Pajama Daze
Follow us on Facebook and Twitter
  • Home
  • Blog
    • PJ's Bookshelf
    • Entertainment Center
  • Pajama Jobs
    • Online Opportunities
  • Joyful Workers
  • Creative in Our Pajamas!
    • Poetry & Other Musings
  • Useful Links
  • Contact Us
  • About the author
  • Disclaimer

The Take-Charge Patient: How You Can Get the Best Medical Care by Martine Ehrenclou, M.A.

2/12/2015

0 Comments

 
Picture
Many of us are now embarking on our first chronic illness journey.  We are navigating very choppy waters, and most of us have difficulty weathering the storm, and we need help. Even veterans, such as I, who have fought for their right to the best medical care possible, or to just find a doctor who believes them, find it a lonely and frustrating peregrination that can make medical conditions worse because of the stress involved. The Take-Charge Patient to the rescue!

My major chronic illness journey began in Australia  and followed me to the USA.  After four heart attacks and continual bouts of what was thought to be Prinzmetal's angina, along with other chronic issues, my pcp called me a hypochondriac and my local cardiologist threw up his hands and told me to find a doctor at a research hospital.   Through a roundabout journey online and on phone, I found a cardiologist at Tufts who turned out to be one of my elementary school classmates, but he couldn't do anything for me.  He led me to a specialist at NIH who was kind enough to call me on the phone and discuss what he could do.  But when we discovered that one of the drugs he used in testing could trigger my asthma, my hopes were dashed.  However, he pointed me to research by a cardiologist with whom he was familiar at UPMC.  Through testing, the new doc also found an arterial issue beyond my heart, diagnosed me with Fibromuscular Dysplasia (FMD) and referred me to a neurologist.  That neurologist was more involved with people who had had a stroke, and not neccessarily my disease, so thanks to the FMDSA, I knew there was a program for FMD at Mass General, where I hit the jackpot. I'm now a participant in their research and get top quality care by a team of specialists.  And they have discovered that the FMD may have played a role in my coronary artery dissection in 2005.  This only took, hmmmm, almost 9 years.

I've learned to be a Take-Charge Patient the hard way, and I still have a lot to learn.  How much easier my life would have been during those stressful years if I could have read this book!  Even though I've become a veteran traveler on this chronic illness journey, I found an incredible amount of information and assistance in this valuable resource. 

Award-winning author Martine Ehrenclou tells of her own journey with chronic pain, which, ironically, began while she was writing The Take-Charge Patient: How You Can Get the Best Medical Care.  Her research with 200 medical professionals provided her with strategies to navigate the health care system, and she was able to incorporate the lessons she learned along the way to create an even more brilliant resource for others suffering with chronic illness and pain.  

Patients and caregivers will both find a wealth of guidance and support in The Take-Charge Patient, a simple step-by-step guide to becoming a self-advocate and navigating the health care system (a most confronting enigma in and of itself) with confidence.  Ehrenclou wrote the book with the intention to empower patients to become pro-active and assertive participants in their own health care.  She guides you through preparing for appointments so that you are taken seriously and given better care; creating your own Health File; finding a good doctor or specialist; managing medication and medical errors; how to research your condition; covering the cost of care and health insurance; preparing for surgery; and clinical trials. She provides easy-to-use checklists and a plethora of resources and medical definitions, with an index to help you find just what you need to know.

The only flaw I found in The Take-Charge Patient is what seems to be a persistent issue with many publications these days, be they self-published e-books or hard copies from major publishers:  Typos.  This may not bother many people.  A few are okay by me, but this many tend to irk me. 

Having said that, I do not hesitate to HIGHLY recommend this quality book for everyone with chronic illness and their caregivers, as well as any family who will soon or later be confronting the befuddling maze of our health care system.  It is easy to read, easy to use, and provides a wealth of information so that you can jump ahead in the queue and not waste years trying to find the best care for your health and well-being. This book is empowering and thoughtful, and I am so very grateful that Ehrenclou has the compassion to share her journey and accumulated knowledge with us.

The Take-Charge Patient: How You Can Get the Best Medical Care (2012, Lemon Grove Press, LLC) is available as an e-book and in paperback from these outlets.

0 Comments

    PJ's Bookshelf

    Reviews are the opinion of the author of this website unless otherwise indicated.

    Archives

    April 2020
    July 2019
    April 2019
    August 2017
    June 2017
    February 2017
    February 2016
    January 2016
    August 2015
    July 2015
    March 2015
    February 2015
    November 2014
    August 2014
    July 2014
    March 2014
    February 2014
    January 2014
    December 2013
    November 2013
    October 2013
    July 2013
    June 2013
    May 2013
    April 2013

    Categories

    All
    Caregiving
    Chronic Illness/Fatigue
    General Health

    RSS Feed

Proudly powered by Weebly
Photo used under Creative Commons from Stéfan