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Help others while helping yourself

7/23/2025

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I've become acquainted with two great organizations that assist with research, product development and services through paid surveys and studies that you do at home: Rare Patient Voice and Savvy Cooperative.

Rare Patient Voice provides paid study opportunities for patients and caregivers to provide feedback on medical products and services.  Patient advocacy and support groups benefit through partnering with Rare Patient Voice by increasing donations.

According to the Rare Patient Voice website (https://rarepatientvoice.com/), through your participation you can:
  • Provide your input as a patient or family caregiver to improve products and services.
  • Help companies and researchers focus more on your disease.
  • Earn rewards for participating in interviews and surveys.
Check out their testimonials: https://rarepatientvoice.com/for-patients/testimonials/

Savvy Cooperative, (https://www.savvy.coop/about-us) the first and only patient-owned public benefit co-op, is an organization created by patients for patients.  Their creators realized that healthcare innovators were designing products and services without input from the actual users - the patients!  They created Savvy Cooperative to give the power back to patients by giving them a voice for their valuable insights. And you get paid for your expertise!  Check out their testimonials: https://endorsal.io/reviews/savvy-cooperative

I'm looking forward to becoming involved with both organizations when life settles down this fall. I love projects where you can do some good, and getting paid is a great bonus! And it's so easy to participate from home! Perfect!


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